So since I decided late last night to let family/friends see the blog, I figured its time to post another update about the what's next step for me. This week is my 27th (oh yes, you read that right) week of treatment. Technically I was only going to have 26 consecutive treatments and the 27th week was going to be my first off week. I then realized that if I did that I would have a treatment the week of Thanksgiving and the week of Christmas. I think not. So we (I) decided that I would go one additional week (this week) and start my first week off the week of Thanksgiving!! So technically this week is my first bi-weekly treatment. I never thought I would get here. I also figured by the time I has halfway done, they would be more certain if everything was working. But, I can't dwell on that too much because I can't change it.
So while the bi-weekly sounds awesome, it's a little less awesome since I'm starting a bone treatment in December. While the overall tumor mass isn't growing, my bone is getting weak at ground zero. Ground zero is where the tumor originally started. The inside of the bone is hallow and the outside shell is strong. Well my outside shell at ground zero is getting thinner and thinner. Eventually if it gets too thin, it will break/shatter. The doctors can't explain why its getting thinner. All my bone counts look good. If the tumor has stopped growing, the bone should re-stabilize. Only, it's not.
Starting in December, I'm going on a new drug to make my bone strong. When I hear myself say this, I keep imagining a cave man saying "Me make bone strong. Strong bone good." So while my treatments are bi-weekly, I'm still going to the hospital 3 weeks out of 4. So it will be tumor treatment, bone treatment, tumor treatment, off week. The bone treatment will go in my port and be pushed over an hour. It is said to have similar side effects as the other treatment. Including nausea and GI issues. I can only hope they will be less than the bone treatments.
PS Have you noticed that I'm still not using the "c" word? I had to see a GI doctor this week and I told him that we (the doctor and I) would NOT be using the "c" words. I think he thought I was kidding? Ummmm, no sir. I was serious and I do not appreciate you dropping those dirty words around me.
I admire your spirit and your writing. Thinking of you.
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