So I'm still on my lovely methotrexate and vinblastine while I await next steps from doctors at Sloan-Kettering and MD Anderson on what to do with my desmoid. I make these seemingly harmless decisions but I know they'll impact the rest of my life. Since the tumor wasn't growing in my shoulder I decided to just stay on the current drug cocktail and wait to see what other doctors thought. Meanwhile, every Wednesday I have chemo I feel like crap Wednesday afternoon and most of the day on Thursday. There have been maybe 2-3 weeks where this has not been the case.
In my analytical way (although the doctors think I'm nuts) I decided there was a common theme of what I was eating. Hurray! So I've been spending weeks trying to replicate the food which made me feel human. My recipe for success that works? Greasy Mexican food on Tuesday night. Lots and lots of queso, chips and chicken. Then after chemo, I grab a cheeseburger and fries. Magically yesterday I felt AWESOME and was able to function after my drug cocktail. I even woke up this morning and felt good. So although the doctor's think I'm nuts (which they are probably right) I feel vindicated. It's working.
PS I keep gaining weight and I get mad saying "I don't understand why!!!" I think if I re-read what I've been eating it would probably explain alot. But you would think a little Mexican and burgers would be counter-acted by the fact I no longer drink alcohol. Let me tell you, I did (and still do) love my adult beverages. I miss them so much. Maybe another blog post later about that and my current frustration.
I'm off on my trip - wish me luck!
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