This is my journey about my desmoid tumor, treatment and general stories from me
Tuesday, September 18, 2012
Just putting it out there - I'm miserable.
I've tried several times to write this post and Blogger is insisting on formatting it with floating images. This is NOT the time to test my patience. Instead, you will get to read me vent.
I'm upset with blogger. I'm upset with the MRI I'm scheduled for this afternoon. I'm upset that the fundraiser I'm planning. I'm upset I had tumor arm pain last week. I just want to curl up and hide.
Why won't people donate to the DTRF? Why won't people come to an event to support me? I know people have other diseases they are behind but don't you realize that if this horrible disease don't get stopped that it is life threatening to me? I'm taking it personally. I shouldn't but I can't help it.
My tumor pain upsets me. It could be that I was working out with my arm or the tumor could be growing. The arm is getting softer but the pain is hard to ignore and write off. That pisses me off.
I keep thinking about horribly depressing thoughts.
I'm miserable. I want this week to be over. I want this disease to be over. I don't want to feel like this any more. I want to stop spontaneously crying. I just want to be OK.
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I love you dear and I'm so sorry things are not going your way this week. I have faith you will continue to be strong and get through this. We will absolutely be there at your fundraiser, and please let me know if there is anything I can do to help with it...I can shoot it out to some GenD folks to get more people to come if you want, I can help set up/clean up/find prizes/whatever you need, just ask. Please hang in there, we are pulling and praying for you!
ReplyDelete-Elise
Just a quick note to tell you that I am a desmoid tumor survivor myself. It is such a little known ailment that few doctors let alone us lay folks even know what it is. I can identify totally with the feelings and frustrations that you are voicing. I hope that you get great results and the damn thing stays gone!
ReplyDeleteTerrance