Sunday, November 11, 2012

How can it be

How can it be so beautiful on a day like today? It's early November and its unseasonably warm outside. It's perfect weather, except almost everything is wrong.

I think I'm finally ready to talk about the week. Probably not ready but this always helps. Getting out the words on paper makes it feel more real. I guess it is time to face the music. On Thursday, while I was sitting at work, the doctor in training called me to tell me the results of my biopsy. There is no way to say this. I have cancer. Real cancer that can move and spread in my body. My body betrayed me. I have three spots in my bicep that are completely surrounded by the desmoid but are cancerous. There is good news: the cancer hasn't spread to any other part in my body. It's stuck in my arm, right now.

Let's talk about the incredibly shitty part of all of this. My desmoid tumor only shows up in 2-3 tumors in a million each year. It's rare. The cancer INSIDE my other tumor is a complete mystery. It probably showed up due to radiation. Most people who get secondary cancers from radiation have them show up 10 years after... not three, like me. Of people who get radiation, only about 2% of people actually get cancer from it. The kicker? My secondary tumor is even more rare than the desmoid. We are talking less than 1 in a million. There have only been two cases EVER where someone with a desmoid got a secondary cancer. Take a second to take all of that in. This shouldn't have happened. 

I stayed as positive as possible. At least it's just in one small section in my arm. That means it's likely to be easy to treat. Oh wrong. If it spreads it will get into my lungs. It's not slow growing but fast growing (high grade tumor). It has to be taken care of immediately. Secondary tumors are resistant to chemo and just stubborn little guys. Since it arose from my radiation, the other desmoid has a high probability of turning into the same type of cancer too. So the worst part of this while thing is that I'm going to loose my arm. My functioning arm that has this terrible disease in it. It has to go. It's bitter sweet.  On one side, they will remove anything that even is closely tumor related. All the bad tissue will go away. It means I get another shot at this. It means I can live a long life and have children one day. It also means I'm going to be an amputee. I see the word typed out and I get sick to my stomach. This is so unfair. I just don't know how this all happened.
 

9 comments:

  1. This is absolutely heartbreaking :( Nothing I can say will make you feel better, but I just wanted to let you know that I'm reading. We're here for whatever you and your hubby need - we're only a short 3.5 hour car drive away. Love you!

    Erin and Jason

    ReplyDelete
  2. We're here for you, sis. Say the word and we'll leave Georgia to come and be with you. Just let us know what you need.

    Jenn and Dave

    ReplyDelete
  3. You are beautiful. You are strong. You are loved.

    we are here for you--anything, ANYTHING you need, call and we will do it/bring it/be it.

    ReplyDelete
  4. Agreed with all of the above. You are so strong and amazing and I hope in a way this is a fresh start for you tumor free. You are not alone and you are blessed with an amazing support system of your loving husband, family, and friends that will be here no matter what. We've got your back...anything, anytime, just call!

    Elise and Scott

    ReplyDelete
  5. We're praying for you! You can do this, anything you need we're here (and can be there)! I know I haven't been around for long but I'm sending you good thoughts, cousin, anything you need just ask!

    Bree & Webb

    ReplyDelete
  6. Nicole- I am so sorry this is happening. You are such a strong person and I know you will make it through this next step of treatment as strong as you've done all the other steps. Continue to stay positive. I'm thinking about you all the time and every time I read your blog I am amazed by your courage.
    XO
    Jennifer B.

    ReplyDelete
  7. I am so sorry to read this! You have all of our love and support. Try to stay positive and know that so many people are thinking of you!

    Adam and Rachel

    ReplyDelete
  8. Nicole,
    Shitty and unfair does not begin to describe your situation. But I know you, and this isn't so much losing an arm, but gaining a new outlook on life. Therapy will be hard. Adjusting will be hard. But in the end,my prayer for you, is that it doesn't slow you down, but gets rid of worry about treatment plans, chemo, and radiation, and gives you time to focus on all the things and people you love without distraction.
    Love you Nicole!

    Lucy

    ReplyDelete
  9. Nicole, you and Chuck have managed to maintain a certain sense of humor and a positive outlook through all of this. Even now you are focused on the tumor free existence you have at the end of this and what that will mean to you both as you plan for your future. You have the support of so many people as you go through this. I think you know that. I'll just reiterate what others have said here...you are strong. Stronger than you sometimes know. Lots of prayers and support being sent your way.

    Jenn

    ReplyDelete